Appreciating life

Being the father of a child with severe cerebral palsy

Michelle Gellman Appelbaum, Janice Smolowitz

Research output: Contribution to journalReview articleResearchpeer-review

3 Citations (Scopus)

Abstract

This phenomenological study examined the experience of being the father of a child with severe cerebral palsy (CP). Participants were selected using purposive sampling. Two interviews were conducted with 6 English-speaking, biological fathers whose children with CP (ages 5Y27 years) were enrolled in a residential and day school in northeastern United States. Audiotaped interviews were transcribed, and thematic analysis was conducted using van Manen's methodology. Themes identified were as follows: Lost in birth; My beautiful unique child; Illness as a way of lifeIyou can't get used to it and after a while it feels like no one cares; PartnersVloyalty and commitment; How the world receives my child; Healthcare providersVI'm here; TornIwhen your child can't live at homeIfinding a place to live and grow; and Faith. Clinicians should encourage, value, and include fathers' input during discussions of medical and social problems and when developing long-term care plans. Further research exploring the experiences of fathers of children with CP should be conducted.

Original languageEnglish
Pages (from-to)36-42
Number of pages7
JournalJournal of Neuroscience Nursing
Volume44
Issue number1
DOIs
StatePublished - 1 Feb 2012

Fingerprint

Cerebral Palsy
Fathers
Interviews
New England
Social Problems
Long-Term Care
Parturition
Delivery of Health Care
Research

Cite this

@article{ded8269f52bd404193e57ac326431cc7,
title = "Appreciating life: Being the father of a child with severe cerebral palsy",
abstract = "This phenomenological study examined the experience of being the father of a child with severe cerebral palsy (CP). Participants were selected using purposive sampling. Two interviews were conducted with 6 English-speaking, biological fathers whose children with CP (ages 5Y27 years) were enrolled in a residential and day school in northeastern United States. Audiotaped interviews were transcribed, and thematic analysis was conducted using van Manen's methodology. Themes identified were as follows: Lost in birth; My beautiful unique child; Illness as a way of lifeIyou can't get used to it and after a while it feels like no one cares; PartnersVloyalty and commitment; How the world receives my child; Healthcare providersVI'm here; TornIwhen your child can't live at homeIfinding a place to live and grow; and Faith. Clinicians should encourage, value, and include fathers' input during discussions of medical and social problems and when developing long-term care plans. Further research exploring the experiences of fathers of children with CP should be conducted.",
author = "Appelbaum, {Michelle Gellman} and Janice Smolowitz",
year = "2012",
month = "2",
day = "1",
doi = "10.1097/JNN.0b013e31823ae4de",
language = "English",
volume = "44",
pages = "36--42",
journal = "Journal of Neuroscience Nursing",
issn = "0888-0395",
publisher = "Lippincott Williams and Wilkins Ltd.",
number = "1",

}

Appreciating life : Being the father of a child with severe cerebral palsy. / Appelbaum, Michelle Gellman; Smolowitz, Janice.

In: Journal of Neuroscience Nursing, Vol. 44, No. 1, 01.02.2012, p. 36-42.

Research output: Contribution to journalReview articleResearchpeer-review

TY - JOUR

T1 - Appreciating life

T2 - Being the father of a child with severe cerebral palsy

AU - Appelbaum, Michelle Gellman

AU - Smolowitz, Janice

PY - 2012/2/1

Y1 - 2012/2/1

N2 - This phenomenological study examined the experience of being the father of a child with severe cerebral palsy (CP). Participants were selected using purposive sampling. Two interviews were conducted with 6 English-speaking, biological fathers whose children with CP (ages 5Y27 years) were enrolled in a residential and day school in northeastern United States. Audiotaped interviews were transcribed, and thematic analysis was conducted using van Manen's methodology. Themes identified were as follows: Lost in birth; My beautiful unique child; Illness as a way of lifeIyou can't get used to it and after a while it feels like no one cares; PartnersVloyalty and commitment; How the world receives my child; Healthcare providersVI'm here; TornIwhen your child can't live at homeIfinding a place to live and grow; and Faith. Clinicians should encourage, value, and include fathers' input during discussions of medical and social problems and when developing long-term care plans. Further research exploring the experiences of fathers of children with CP should be conducted.

AB - This phenomenological study examined the experience of being the father of a child with severe cerebral palsy (CP). Participants were selected using purposive sampling. Two interviews were conducted with 6 English-speaking, biological fathers whose children with CP (ages 5Y27 years) were enrolled in a residential and day school in northeastern United States. Audiotaped interviews were transcribed, and thematic analysis was conducted using van Manen's methodology. Themes identified were as follows: Lost in birth; My beautiful unique child; Illness as a way of lifeIyou can't get used to it and after a while it feels like no one cares; PartnersVloyalty and commitment; How the world receives my child; Healthcare providersVI'm here; TornIwhen your child can't live at homeIfinding a place to live and grow; and Faith. Clinicians should encourage, value, and include fathers' input during discussions of medical and social problems and when developing long-term care plans. Further research exploring the experiences of fathers of children with CP should be conducted.

UR - http://www.scopus.com/inward/record.url?scp=84856348392&partnerID=8YFLogxK

U2 - 10.1097/JNN.0b013e31823ae4de

DO - 10.1097/JNN.0b013e31823ae4de

M3 - Review article

VL - 44

SP - 36

EP - 42

JO - Journal of Neuroscience Nursing

JF - Journal of Neuroscience Nursing

SN - 0888-0395

IS - 1

ER -