TY - JOUR
T1 - Evaluating Stuttering Self-Stigma and Its Relationship to Adverse Impact in Children and Adolescents With the Child Stuttering Self-Stigma Scale
AU - Johnson, Chelsea A.
AU - Gerwin, Katelyn L.
AU - Tichenor, Seth E.
AU - Boyle, Michael P.
AU - Walsh, Bridget
N1 - Publisher Copyright:
© 2024, Author. All rights reserved.
PY - 2024/9
Y1 - 2024/9
N2 - Purpose: Self-stigma occurs when a person internalizes and applies stereo-types, prejudice, and discrimination to themselves. For adults who stutter, self-stigma is linked to negative outcomes and reduced quality of life. The develop-ment of self-stigma in people who stutter is not well understood. The aim of this study is to evaluate stuttering self-stigma in school-age children and adoles-cents and explore potential relationships to stuttering’s overall adverse impact. Method: One hundred one children and adolescents who stutter, aged 10– 18 years, completed the Overall Assessment of the Speaker’s Experience of Stuttering (OASES), a measure of adverse impact related to stuttering, and the Childhood Self-Stigma of Stuttering Scale (Child 4S), our novel adapted version of the Self-Stigma of Stuttering Scale (4S) created for this study. The Child 4S comprises three subscales measuring three stages of self-stigma: Awareness, Agreement, and Application. Each stage was evaluated for relationships with child age and the adverse impact of stuttering. Results: We found a range of self-stigma scores among children and adoles-cents who stutter. Child age did not correlate with Awareness and Agreement; however, older children and adolescents reported greater Application. All stages of self-stigma strongly predicted adverse impact as measured by the OASES, and latter stages of the model were stronger predictors than earlier stages. Conclusions: Children as young as 10 years old may experience stuttering self-stigma, and the application of self-stigma increases in adolescence, a critical period in the development of personal identity. Importantly, all stages of self-stigma predicted adverse impact related to stuttering, with latter stages being stronger predictors than earlier ones consistent with the progressive model of self-stigma being tested. The findings highlight the need for targeted, early intervention to mitigate downstream effects of stuttering self-stigma.
AB - Purpose: Self-stigma occurs when a person internalizes and applies stereo-types, prejudice, and discrimination to themselves. For adults who stutter, self-stigma is linked to negative outcomes and reduced quality of life. The develop-ment of self-stigma in people who stutter is not well understood. The aim of this study is to evaluate stuttering self-stigma in school-age children and adoles-cents and explore potential relationships to stuttering’s overall adverse impact. Method: One hundred one children and adolescents who stutter, aged 10– 18 years, completed the Overall Assessment of the Speaker’s Experience of Stuttering (OASES), a measure of adverse impact related to stuttering, and the Childhood Self-Stigma of Stuttering Scale (Child 4S), our novel adapted version of the Self-Stigma of Stuttering Scale (4S) created for this study. The Child 4S comprises three subscales measuring three stages of self-stigma: Awareness, Agreement, and Application. Each stage was evaluated for relationships with child age and the adverse impact of stuttering. Results: We found a range of self-stigma scores among children and adoles-cents who stutter. Child age did not correlate with Awareness and Agreement; however, older children and adolescents reported greater Application. All stages of self-stigma strongly predicted adverse impact as measured by the OASES, and latter stages of the model were stronger predictors than earlier stages. Conclusions: Children as young as 10 years old may experience stuttering self-stigma, and the application of self-stigma increases in adolescence, a critical period in the development of personal identity. Importantly, all stages of self-stigma predicted adverse impact related to stuttering, with latter stages being stronger predictors than earlier ones consistent with the progressive model of self-stigma being tested. The findings highlight the need for targeted, early intervention to mitigate downstream effects of stuttering self-stigma.
UR - http://www.scopus.com/inward/record.url?scp=85204165532&partnerID=8YFLogxK
U2 - 10.1044/2024_JSLHR-24-00069
DO - 10.1044/2024_JSLHR-24-00069
M3 - Article
C2 - 39141882
AN - SCOPUS:85204165532
SN - 1092-4388
VL - 67
SP - 2920
EP - 2934
JO - Journal of Speech, Language, and Hearing Research
JF - Journal of Speech, Language, and Hearing Research
IS - 9
ER -