The Willowbrook Futures Project: A Longitudinal Analysis of Person-Centered Planning

Steve Holburn, John W. Jacobson, Allen A. Schwartz, Michael J. Flory, Peter M. Vietze

Research output: Contribution to journalArticlepeer-review

41 Scopus citations


We conducted a longitudinal comparative evaluation of person-centered planning processes and outcomes for 20 individuals with intellectual disabilities and problem behavior (former residents of Willowbrook) and a matched contrast group, who received traditional interdisciplinary service planning (ISP). At the inception of the study, all participants were living in one of four other developmental centers (institutions) in New York City. Process and outcome data obtained from questionnaires completed by team members approximately every 8 months at four time periods showed that the rate of improvement in both person-centered planning process and outcomes for the intervention group was significantly greater than that of the comparison group. Eighteen of 19 person-centered planning participants moved to community living arrangements, as did 5 of 18 in the contrast group.

Original languageEnglish
Pages (from-to)63-76+78
JournalAmerican Journal on Mental Retardation
Issue number1
StatePublished - Jan 2004


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